We've established the Evan T. Mandeville DIPG Research Fund at Dana-Farber Cancer Institute in memory of our son Evan who on November 13, 2012 lost his battle to Diffuse Intrinsic Pontine Glioma. He was just 11 years old.
Evan participated in two clinical trials during his exactly one year battle. Clinical trials are the ONLY hope for this devastating diagnosis. We are doing what we can to support efforts to find a cure for DIPG; this rare, always fatal and under-funded pediatric brain tumor.
Dr. Mark Kiernan, MD, Ph.D
Pediatric Neuro-Oncologist speaking to the importance of funding.
Evan's Crew: Towards a cure for DIPG